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Psychiatric Advance Directives as a complex and multistage intervention: a realist systematic review

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Nicaise, Pablo [UCL] Lorant, Vincent [UCL] Dubois, Vincent [UCL]

Psychiatric Advance Directives (PADs) are documents that allow users with severe and chronic mental illnesses to notify their treatment preferences for future crisis relapses and to appoint a surrogate decision-maker for a period of incompetence. Despite many supposed clinical and organisational benefits, their take-up rate has remained very low and their clinical evaluation has given contradictory results for organisational outcomes. Intermediary results are available, however, which rely on different theoretical views about how PADs are supposed to work. We carried out a realist systematic review that considered the PAD as a multistage intervention including the definition of the document, its completion and its access and honouring. We identified the theoretical frameworks underlying this kind of intervention and examined the available evidence that supported or contradicted the expectations at each stage of the intervention. Forty-seven references were retrieved, ranging from 1996 to 2009. Three frameworks underlie a PAD intervention: enhancement of the autonomy of the user, improvement of the therapeutic alliance and integration of care through partnership working. Although designed in the first place with a view to sustaining the user’s autonomy, results indicate that the intervention is more efficient within a therapeutic alliance framework. Moreover, much is known about the completion process and the content of the document, but very little about its access and honouring. The mixture of expectations makes the purpose of PADs unclear, for example, crisis relapse prevention or management, advance planning of long-term or emergency care, or reduction in the resort to coercion. This may explain their low take-up rates. Hence, frameworks and purpose have to be clarified. The shape of the whole intervention at each stage relies on such clarification. More research is needed, particularly on the later stages of the intervention, as the evidence for how PADs should be implemented is still incomplete.

Type de document Article de périodique (Journal article) – Synthèse de littérature
Type d'accès Accès restreint
Année de publication 2013
Langue Anglais
Information sur le périodique "Health and Social Care in the Community" - Vol. 21, no. 1, p. 1-14 (2013)
Peer reviewed oui
Editeur Wiley-Blackwell Publishing Ltd. ((United Kingdom) Oxford)
issn 0966-0410
e-issn 1365-2524
Statut de la publication Publié
Affiliations UCL - SSS/IRSS - Institut de recherche santé et société
UCL - (SLuc) Service des urgences
Mots-clés Advance planning ; Autonomy ; Crisis plans ; Psychiatric Advance Directives ; Therapeutic alliance ; MHSR
Liens
  1. Adams J. R., Drake R. E., Wolford G. L., Shared Decision-Making Preferences of People With Severe Mental Illness, 10.1176/appi.ps.58.9.1219
  2. Amering M., Denk E., Griengl H., Sibitz I., Stastny P., Psychiatric wills of mental health professionals: a survey of opinions regarding advance directives in psychiatry, 10.1007/s001270050108
  3. Amering M., Psychiatric advance directives: qualitative study of informed deliberations by mental health service users, 10.1192/bjp.186.3.247
  4. Atkinson, Advance Directives in Mental Health - Theory, Practice and Ethics (2007)
  5. ATKINSON JACQUELINE, GARNER HELEN, PATRICK HILARY, STUART SUSAN, Issues in the development of advance directives in mental health care, 10.1080/09638230310001603537
  6. Atkinson Jacqueline M, Garner Helen C, Stuart Susan, Patrick Hilary, The development of potential models of advance directives in mental health care, 10.1080/09638230310001627937
  7. Atkinson J.M., Garner H.C., Gilmour W.H., Models of advance directives in mental health care: : Stakeholder views, 10.1007/s00127-004-0788-7
  8. A survey on use of advance directives for mental health treatment in Oregon, 10.1176/ps.47.12.1387
  9. Backlar Patricia, McFarland Bentson H., Swanson Jeffrey W., Mahler Jo, 10.1023/a:1012214807933
  10. Brugha R., Stakeholder analysis: a review, 10.1093/heapol/15.3.239
  11. Campbell Leslie Anne, Kisely Steve R, Advance treatment directives for people with severe mental illness, 10.1002/14651858.cd005963.pub2
  12. Drake Robert E., Deegan Patricia E., Rapp Charles, The promise of shared decision making in mental health., 10.2975/34.1.2010.7.13
  13. Elbogen Eric B., Swartz Marvin S., Van Dorn Richard, Swanson Jeffrey W., Kim Mimi, Scheyett Anna, Clinical Decision Making and Views About Psychiatric Advance Directives, 10.1176/appi.ps.57.3.350
  14. Elbogen Eric B., Swanson Jeffrey W., Appelbaum Paul S., Swartz Marvin S., Ferron Joelle, Van Dorn Richard A., Wagner H. Ryan, Competence to complete psychiatric advance directives: Effects of facilitated decision making., 10.1007/s10979-006-9064-6
  15. Elbogen Eric B., Swanson Jeffrey W., Swartz Marvin S., Van Dorn Richard, Ferron Joelle, Wagner H. Ryan, Wilder Christine, Effectively implementing psychiatric advance directives to promote self-determination of treatment among people with mental illness., 10.1037/1076-8971.13.4.273
  16. Fleury Marie‐Josée, Mercier Céline, 10.1023/a:1021227600823
  17. Flood C., Byford S., Henderson C., Leese M., Thornicroft G., Sutherby K., Szmukler G., Joint crisis plans for people with psychosis: economic evaluation of a randomised controlled trial, 10.1136/bmj.38929.653704.55
  18. Glasby, International Perspectives on Health and Social Care: Partnership Working in Action (2008)
  19. de Haan L, van Raaij B, van den Berg R, Jager M, Houweling P, Stockmann M, Delsing P, Linszen D, Peters B, Wouters L, Preferences for treatment during a first psychotic episode, 10.1016/s0924-9338(01)00542-9
  20. Henderson C., Effect of joint crisis plans on use of compulsory treatment in psychiatry: single blind randomised controlled trial, 10.1136/bmj.38155.585046.63
  21. Henderson C., Flood C., Szmukler G., , 10.1176/appi.ps.58.1.139-a
  22. Henderson C., Swanson J. W., Szmukler G., Thornicroft G., Zinkler M., A Typology of Advance Statements in Mental Health Care, 10.1176/appi.ps.59.1.63
  23. Henderson Claire, Flood Chris, Leese Morven, Thornicroft Graham, Sutherby Kim, Szmukler George, Views of service users and providers on joint crisis plans : Single blind randomized controlled trial, 10.1007/s00127-008-0442-x
  24. Henderson Claire, Jackson Carlos, Slade Mike, Young Alexander S., Strauss Jennifer L., How Should we Implement Psychiatric Advance Directives? Views of Consumers, Caregivers, Mental Health Providers and Researchers, 10.1007/s10488-010-0264-5
  25. Heslop Liza, Elsom Stephen, Parker Nyree, Improving continuity of care across psychiatric and emergency services: combining patient data within a participatory action research framework, 10.1046/j.1365-2648.2000.01251.x
  26. JOSHI KAUSTUBH G., Psychiatric Advance Directives : , 10.1097/00131746-200307000-00005
  27. Khazaal Yasser, Richard Christèle, Matthieu-Darekar Shona, Quement Bruno, Kramer Ueli, Preisig Martin, Advance directives in bipolar disorder, a cognitive behavioural conceptualization, 10.1016/j.ijlp.2007.11.001
  28. Khazaal Yasser, Chatton Anne, Pasandin Natalia, Zullino Daniele, Preisig Martin, Advance directives based on cognitive therapy: A way to overcome coercion related problems, 10.1016/j.pec.2008.08.006
  29. Kim Mimi M., Van Dorn Richard A., Scheyett Anna M., Elbogen Eric E., Swanson Jeffrey W., Swartz Marvin S., McDaniel Laura A., Understanding the Personal and Clinical Utility of Psychiatric Advance Directives: A Qualitative Perspective, 10.1521/psyc.2007.70.1.19
  30. Kim Mimi M., Scheyett Anna M., Elbogen Eric B., Van Dorn Richard A., McDaniel Laura A., Swartz Marvin S., Swanson Jeffrey W., Ferron Joelle, Front Line Workers’ Attitudes towards Psychiatric Advance Directives, 10.1007/s10597-007-9104-9
  31. McCabe R., Saidi M., Priebe S., Patient-reported outcomes in schizophrenia, 10.1192/bjp.191.50.s21
  32. O’Connell Maria J., Stein Catherine H., Psychiatric Advance Directives: Perspectives of Community Stakeholders, 10.1007/s10488-004-0843-4
  33. PAPAGEORGIOU A., Advance directives for patients compulsorily admitted to hospital with serious mental illness: Randomised controlled trial, 10.1192/bjp.181.6.513
  34. Papageorgiou Alexia, Janmohamed Anis, King Michael, Davidson Oliver, Dawson John, Advance directives for patients compulsorily admitted to hospital with serious mental disorders: Directive content and feedback from patients and professionals, 10.1080/09638230410001729825
  35. Pawson Ray, Greenhalgh Trisha, Harvey Gill, Walshe Kieran, Realist review - a new method of systematic review designed for complex policy interventions, 10.1258/1355819054308530
  36. Peto Tracy, Srebnik Debra, Zick Ellen, Russo Joan, Support Needed to Create Psychiatric Advance Directives, 10.1023/b:apih.0000034417.17494.58
  37. Priebe S., McCabe R., The therapeutic relationship in psychiatric settings, 10.1111/j.1600-0447.2005.00721.x
  38. Scheyett Anna M., Kim Mimi M., Swanson Jeffrey W., Swartz Marvin S., Psychiatric advance directives: A tool for consumer empowerment and recovery., 10.2975/31.1.2007.70.75
  39. Sherman Paul S., 10.1023/a:1018731922671
  40. Srebnik Debra, Brodoff Lisa, Implementing psychiatric advance directives: Service provider issues and answers, 10.1007/bf02287316
  41. Srebnik Debra S., Fond John Q. La, Advance Directives for Mental Health Treatment, 10.1176/ps.50.7.919
  42. Srebnik D. S., Russo J., Consistency of Psychiatric Crisis Care With Advance Directive Instructions, 10.1176/appi.ps.58.9.1157
  43. Srebnik Debra, Russo Joan, Use of Psychiatric Advance Directives During Psychiatric Crisis Events, 10.1007/s10488-008-0172-0
  44. Srebnik Debra S., Russo Joan, Sage Julie, Peto Tracy, Zick Ellen, Interest in Psychiatric Advance Directives Among High Users of Crisis Services and Hospitalization, 10.1176/appi.ps.54.7.981
  45. Srebnik Debra S., Rutherford Lindsay T., Peto Tracy, Russo Joan, Zick Ellen, Jaffe Craig, Holtzheimer Paul, The Content and Clinical Utility of Psychiatric Advance Directives, 10.1176/appi.ps.56.5.592
  46. Summers R. F., Therapeutic Alliance as a Measurable Psychotherapy Skill, 10.1176/appi.ap.27.3.160
  47. Sutherby K., Szrnukler G. L., Halpern A., Alexander M., Thornicroft G., Johnson C., Wright S., A study of ‘crisis cards' in a community psychiatric service, 10.1111/j.1600-0447.1999.tb10914.x
  48. Swanson Jeffrey W., Tepper Miriam C., Backlar Patricia, Swartz Marvin S., Psychiatric Advance Directives: An Alternative to Coercive Treatment?, 10.1080/00332747.2000.11024908
  49. Swanson Jeffrey W., Swartz Marvin S., Hannon Michael J., Elbogen Eric B., Wagner H. Ryan, McCauley Barbara J., Butterfield Marian I., Psychiatric Advance Directives: A Survey of Persons With Schizophrenia, Family Members, and Treatment Providers, 10.1080/14999013.2003.10471180
  50. Swanson, Journal of the American Academy of Psychiatry and the Law, 34, 43 (2006a)
  51. Swanson Jeffrey, Facilitated Psychiatric Advance Directives: A Randomized Trial of an Intervention to Foster Advance Treatment Planning Among Persons with Severe Mental Illness, 10.1176/appi.ajp.163.11.1943
  52. Swanson Jeffrey W., McCrary S. Van, Swartz Marvin S., Van Dorn Richard A., Elbogen Eric B., Overriding psychiatric advance directives: Factors associated with psychiatrists' decisions to preempt patients' advance refusal of hospitalization and medication., 10.1007/s10979-006-9032-1
  53. Swartz Marvin S., Swanson Jeffrey W., Van Dorn Richard A., Elbogen Eric B., Shumway Martha, Patient Preferences for Psychiatric Advance Directives, 10.1080/14999013.2006.10471231
  54. Szasz Thomas S., The psychiatric will: A new mechanism for protecting persons against "psychosis" and psychiatry., 10.1037/0003-066x.37.7.762
  55. Szmukler George, ‘Advance statements’ in psychiatry, 10.1016/j.mppsy.2006.11.011
  56. Thomas P., Compulsion and psychiatry--the role of advance statements, 10.1136/bmj.329.7458.122
  57. TRIVEDI P., From passive subjects to equal partners: Qualitative review of user involvement in research, 10.1192/bjp.181.6.468
  58. Van Citters A. D., Naidoo U., Foti M. E., Using a Hypothetical Scenario to Inform Psychiatric Advance Directives, 10.1176/appi.ps.58.11.1467
  59. Dorn Richard A. Van, Swartz Marvin S., Elbogen Eric B., Swanson Jeffrey W., Kim Mimi, Ferron Joelle, McDaniel Laura A., Scheyett Anna M., Clinicians’ Attitudes Regarding Barriers to the Implementation of Psychiatric Advance Directives, 10.1007/s10488-005-0017-z
  60. Van Dorn Richard A., Swanson Jeffrey W., Swartz Marvin S., Elbogen Eric, Ferron Joelle, Reducing Barriers to Completing Psychiatric Advance Directives, 10.1007/s10488-008-0187-6
  61. Varekamp I., Ulysses directives in The Netherlands: opinions of psychiatrists and clients, 10.1016/j.healthpol.2004.03.003
  62. Varvasovszky Z., A stakeholder analysis, 10.1093/heapol/15.3.338
Référence bibliographique Nicaise, Pablo ; Lorant, Vincent ; Dubois, Vincent. Psychiatric Advance Directives as a complex and multistage intervention: a realist systematic review. In: Health and Social Care in the Community, Vol. 21, no. 1, p. 1-14 (2013)
Permalien http://hdl.handle.net/2078.1/109981