User menu

The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany.

Bibliographic reference Berntorp, Erik ; Dargaud, Yesim ; Hart, Daniel ; Lobet, Sébastien ; Mancuso, Maria Elisa ; et. al. The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany.. In: European Journal of Haematology, Vol. 98, no.Suppl 85, p. 1-15 (2017)
Permanent URL
  1. France, J Bone Joint Surg Br, 47, 247 (1965)
  2. O'Mahony B., Noone D., Giangrande P. L. F., Prihodova L., Haemophilia care in Europe - a survey of 35 countries, 10.1111/hae.12125
  3. Windyga, Przegl Epidemiol, 62, 415 (2008)
  4. COLVIN B. T., ASTERMARK J., FISCHER K., GRINGERI A., LASSILA R., SCHRAMM W., THOMAS A., INGERSLEV J., , European principles of haemophilia care, 10.1111/j.1365-2516.2007.01625.x
  5. Gringeri A., Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group, 10.1182/blood-2003-03-0941
  6. SCALONE L., MANTOVANI L. G., MANNUCCI P. M., GRINGERI A., , Quality of life is associated to the orthopaedic status in haemophilic patients with inhibitors, 10.1111/j.1365-2516.2006.01204.x
  7. Schramm W., Gringeri A., Ljung R., Berger K., Crispin A., Bullinger M., Giangrande P. L. F., Mackensen S., Mantovani L. G., Nemes L., Serban M., , Haemophilia Care in Europe: the ESCHQoL study, 10.1111/j.1365-2516.2012.02847.x
  8. Gibikote Sridhar, Doria Andrea, Keshava Shyamkumar, Imaging Evaluation of Hemophilia: Musculoskeletal Approach, 10.1055/s-0035-1564798
  9. Doria Andrea S., Keshava Shyamkumar N., Mohanta Arun, Jarrin Jose, Blanchette Victor, Srivastava Alok, Moineddin Rahim, Kavitha M. L., Hilliard Pamela, Poonnoose Pradeep, Gibikote Sridhar, Diagnostic Accuracy of Ultrasound for Assessment of Hemophilic Arthropathy: MRI Correlation, 10.2214/ajr.14.12501
  10. Lauersen Jeppe Bo, Bertelsen Ditte Marie, Andersen Lars Bo, The effectiveness of exercise interventions to prevent sports injuries: a systematic review and meta-analysis of randomised controlled trials, 10.1136/bjsports-2013-092538
  11. Negrier C., Seuser A., Forsyth A., Lobet S., Llinas A., Rosas M., Heijnen L., The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity, 10.1111/hae.12118
  12. KALSI H., NANAYAKKARA L., PASI K. J., BOWLES L., HART D. P., Access to primary dental care for patients with inherited bleeding disorders : ACCESS TO PRIMARY DENTAL CARE WITH INHERITED BLEEDING DISORDERS, 10.1111/j.1365-2516.2011.02716.x
  13. Srivastava A., Brewer A. K., Mauser-Bunschoten E. P., Key N. S., Kitchen S., Llinas A., Ludlam C. A., Mahlangu J. N., Mulder K., Poon M. C., Street A., , Guidelines for the management of hemophilia, 10.1111/j.1365-2516.2012.02909.x
  14. Carcao M., Changing paradigm of prophylaxis with longer acting factor concentrates, 10.1111/hae.12405
  15. Mahdi Ali J., Obaji Samya G., Collins Peter W., Role of enhanced half-life factor VIII and IX in the treatment of haemophilia, 10.1111/bjh.13360
  16. Powell Jerry S., Pasi K. John, Ragni Margaret V., Ozelo Margareth C., Valentino Leonard A., Mahlangu Johnny N., Josephson Neil C., Perry David, Manco-Johnson Marilyn J., Apte Shashikant, Baker Ross I., Chan Godfrey C., Novitzky Nicolas, Wong Raymond S., Krassova Snejana, Allen Geoffrey, Jiang Haiyan, Innes Alison, Li Shuanglian, Cristiano Lynda M., Goyal Jaya, Sommer Jurg M., Dumont Jennifer A., Nugent Karen, Vigliani Gloria, Brennan Aoife, Luk Alvin, Pierce Glenn F., Phase 3 Study of Recombinant Factor IX Fc Fusion Protein in Hemophilia B, 10.1056/nejmoa1305074
  17. Mahlangu J., Powell J. S., Ragni M. V., Chowdary P., Josephson N. C., Pabinger I., Hanabusa H., Gupta N., Kulkarni R., Fogarty P., Perry D., Shapiro A., Pasi K. J., Apte S., Nestorov I., Jiang H., Li S., Neelakantan S., Cristiano L. M., Goyal J., Sommer J. M., Dumont J. A., Dodd N., Nugent K., Vigliani G., Luk A., Brennan A., Pierce G. F., , Phase 3 study of recombinant factor VIII Fc fusion protein in severe hemophilia A, 10.1182/blood-2013-10-529974
  18. Muto A., Yoshihashi K., Takeda M., Kitazawa T., Soeda T., Igawa T., Sakamoto Y., Haraya K., Kawabe Y., Shima M., Yoshioka A., Hattori K., Anti-factor IXa/X bispecific antibody (ACE910): hemostatic potency against ongoing bleeds in a hemophilia A model and the possibility of routine supplementation, 10.1111/jth.12474
  19. Chowdary P., Lethagen S., Friedrich U., Brand B., Hay C., Abdul Karim F., Klamroth R., Knoebl P., Laffan M., Mahlangu J., Miesbach W., Dalsgaard Nielsen J., Martín-Salces M., Angchaisuksiri P., Safety and pharmacokinetics of anti-TFPI antibody (concizumab) in healthy volunteers and patients with hemophilia: a randomized first human dose trial, 10.1111/jth.12864
  20. Sehgal Alfica, Barros Scott, Ivanciu Lacramioara, Cooley Brian, Qin June, Racie Tim, Hettinger Julia, Carioto Mary, Jiang Yongfeng, Brodsky Josh, Prabhala Harsha, Zhang Xuemei, Attarwala Husain, Hutabarat Renta, Foster Don, Milstein Stuart, Charisse Klaus, Kuchimanchi Satya, Maier Martin A, Nechev Lubo, Kandasamy Pachamuthu, Kel'in Alexander V, Nair Jayaprakash K, Rajeev Kallanthottathil G, Manoharan Muthiah, Meyers Rachel, Sorensen Benny, Simon Amy R, Dargaud Yesim, Negrier Claude, Camire Rodney M, Akinc Akin, An RNAi therapeutic targeting antithrombin to rebalance the coagulation system and promote hemostasis in hemophilia, 10.1038/nm.3847
  21. A Phase 1 Study of an Investigational Drug, ALN-AT3SC, in healthy volunteers and hemophilia A or B patients
  22. An Open-label Extension Study of an Investigational Drug, ALN-AT3SC, in patients with moderate or severe hemophilia A or B
  23. Nienhuis Arthur W., Nathwani Amit C., Davidoff Andrew M., Gene Therapy for Hemophilia, 10.1089/hum.2016.018
  24. BioMarin BioMarin provides encouraging preliminary data on first 8 patients in hemophilia A gene therapy program
  25. Petrini Pia, Valentino Leonard A, Gringeri Alessandro, Re Wendy M, Ewenstein Bruce, Individualizing prophylaxis in hemophilia: a review, 10.1586/17474086.2015.1002465
  26. Nijdam A., Kurnik K., Liesner R., Ljung R., Nolan B., Petrini P., Fischer K., , How to achieve full prophylaxis in young boys with severe haemophilia A: different regimens and their effect on early bleeding and venous access, 10.1111/hae.12613
  27. Gouw S. C., van den Berg H. M., Fischer K., Auerswald G., Carcao M., Chalmers E., Chambost H., Kurnik K., Liesner R., Petrini P., Platokouki H., Altisent C., Oldenburg J., Nolan B., Garrido R. P., Mancuso M. E., Rafowicz A., Williams M., Clausen N., Middelburg R. A., Ljung R., van der Bom J. G., , Intensity of factor VIII treatment and inhibitor development in children with severe hemophilia A: the RODIN study, 10.1182/blood-2012-09-457036
  28. COLLINS P. W., FISCHER K., MORFINI M., BLANCHETTE V. S., BJÖRKMAN S., , Implications of coagulation factor VIII and IX pharmacokinetics in the prophylactic treatment of haemophilia : PHARMACOKINETICS AND PROPHYLAXIS, 10.1111/j.1365-2516.2010.02370.x
  29. Schrijvers Liesbeth, Beijlevelt-Van der Zande Marlène, Peters Marjolein, Lock Janske, Cnossen Marjon, Schuurmans Marieke, Fischer Kathelijn, Achieving self-management of prophylactic treatment in adolescents: The case of haemophilia, 10.1016/j.pec.2016.01.016
  30. Manco-Johnson M. J., Kempton C. L., Reding M. T., Lissitchkov T., Goranov S., Gercheva L., Rusen L., Ghinea M., Uscatescu V., Rescia V., Hong W., Randomized, controlled, parallel-group trial of routine prophylaxis vs. on-demand treatment with sucrose-formulated recombinant factor VIII in adults with severe hemophilia A (SPINART), 10.1111/jth.12202
  31. Holme P. A., Combescure C., Tait R.C., Berntorp E., Rauchensteiner S., de Moerloose P., , Hypertension, haematuria and renal functioning in haemophilia - a cross-sectional study in Europe, 10.1111/hae.12847
  32. Staritz P., de Moerloose P., Schutgens R., Dolan G., , Applicability of the European Society of Cardiology guidelines on management of acute coronary syndromes to people with haemophilia - an assessment by the ADVANCE Working Group, 10.1111/hae.12189
  33. Schutgens R. E. G., Klamroth R., Pabinger I., Dolan G., , Management of atrial fibrillation in people with haemophilia - a consensus view by the ADVANCE Working Group, 10.1111/hae.12525
  34. Lip Gregory Y.H., Nieuwlaat Robby, Pisters Ron, Lane Deirdre A., Crijns Harry J.G.M., Refining Clinical Risk Stratification for Predicting Stroke and Thromboembolism in Atrial Fibrillation Using a Novel Risk Factor-Based Approach, 10.1378/chest.09-1584
  35. Pisters Ron, Lane Deirdre A., Nieuwlaat Robby, de Vos Cees B., Crijns Harry J.G.M., Lip Gregory Y.H., A Novel User-Friendly Score (HAS-BLED) To Assess 1-Year Risk of Major Bleeding in Patients With Atrial Fibrillation, 10.1378/chest.10-0134
  36. Mauser-Bunschoten EP Symptomatic carriers of haemophilia
  37. Peynet, Haemophilia, 18, 1 (2012)
  38. RENAULT N. K., HOWELL R. E., ROBINSON K. S., GREER W. L., Qualitative assessment of the emotional and behavioural responses of haemophilia A carriers to negative experiences in their medical care : HA CARRIER RESPONSES TO THEIR MEDICAL CARE, 10.1111/j.1365-2516.2010.02424.x
  39. Plug I., Bleeding in carriers of hemophilia, 10.1182/blood-2005-09-3879
  40. MIESBACH W., ALESCI S., GEISEN C., OLDENBURG J., Association between phenotype and genotype in carriers of haemophilia A : BLEEDING AND GENE MUTATION IN CARRIERS OF HAEMOPHILIA A, 10.1111/j.1365-2516.2010.02426.x
  41. Olsson A., Hellgren M., Berntorp E., Holmström M., Baghaei F., Bleeding phenotype in carriers of haemophilia A does not correlate with thrombin generation, 10.1111/hae.12585
  42. Leuer Marco, Oldenburg Johannes, Lavergne Jean-Maurice, Ludwig Michael, Fregin Andreas, Eigel Anton, Ljung Rolf, Goodeve Anne, Peake Ian, Olek Klaus, Somatic Mosaicism in Hemophilia A: A Fairly Common Event, 10.1086/321285
  43. KASPER C. K., LIN J. C., Prevalence of sporadic and familial haemophilia, 10.1111/j.1365-2516.2006.01397.x
  44. Kessler L., Adams R., Mighion L., Walther S., Ganguly A., Prenatal diagnosis in haemophilia A: experience of the genetic diagnostic laboratory, 10.1111/hae.12517
  45. Fischer, Haemophilia, 17, 4533 (2001)
  46. FRAX