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Advances in hemophilia care: report of two symposia at the Hemophilia 2010 World Congress

Bibliographic reference Dolan, Gerry ; Cruz, Jussara Almeida ; Steinhagen-Thiessen, Elisabeth ; Kessler, Craig ; Haaning, Jesper ; et. al. Advances in hemophilia care: report of two symposia at the Hemophilia 2010 World Congress. In: Advances in Therapy : the international journal of drug, device and diagnostic research, Vol. 29, no. Suppl 1, p. 1-16 (2012)
Permanent URL http://hdl.handle.net/2078/124949
  1. Berlin Aging Study. Available at: www.base-berlin.mpg.de . Accessed Sep 29 2010.
  2. PLUG I., VAN DER BOM J. G., PETERS M., MAUSER-BUNSCHOTEN E. P., DE GOEDE-BOLDER A., HEIJNEN L., SMIT C., WILLEMSE J., ROSENDAAL F. R., Mortality and causes of death in patients with hemophilia, 1992-2001: a prospective cohort study1, 10.1111/j.1538-7836.2006.01808.x
  3. Triemstra Mattanja, Mortality in Patients with Hemophilia: Changes in a Dutch Population from 1986 to 1992 and 1973 to 1986, 10.7326/0003-4819-123-11-199512010-00002
  4. Kulkarni Roshni, Soucie J. Michael, Evatt Bruce L., , Prevalence and risk factors for heart disease among males with hemophilia, 10.1002/ajh.20339
  5. SIBONI S. M., MANNUCCI P. M., GRINGERI A., FRANCHINI M., TAGLIAFERRI A., FERRETTI M., TRADATI F. C., SANTAGOSTINO E., von MACKENSEN S., , Health status and quality of life of elderly persons with severe hemophilia born before the advent of modern replacement therapy, 10.1111/j.1538-7836.2009.03318.x
  6. HOFSTEDE F. G., FIJNVANDRAAT K., PLUG I., KAMPHUISEN P. W., ROSENDAAL F. R., PETERS M., Obesity: a new disaster for haemophilic patients? A nationwide survey, 10.1111/j.1365-2516.2008.01806.x
  7. Rosendaal F. R., Briét E., Stibbe J., Herpen G. van, Leuven J. A. Gevers, Hofman A., Vandenbroucke J. P., Haemophilia protects against ischaemic heart disease: a study of risk factors, 10.1111/j.1365-2141.1990.tb07793.x
  8. Darby S. C., Kan S. W., Spooner R. J., Giangrande P. L. F., Hill F. G. H., Hay C. R. M., Lee C. A., Ludlam C. A., Williams M., , Mortality rates, life expectancy, and causes of death in people with hemophilia A or B in the United Kingdom who were not infected with HIV, 10.1182/blood-2006-10-050435
  9. Rosendaal F. R., Varekamp I., Smit C., Bröcker-Vriends A. H. J. T., van Dijck H., Vandenbroucke J. P., Hermans J., Suurmeijer T. P. B. M., Briët E., Mortality and causes of death in Dutch haemophiliacs, 1973–86, 10.1111/j.1365-2141.1989.tb06277.x
  10. MIESBACH W., ALESCI S., KREKELER S., SEIFRIED E., Comorbidities and bleeding pattern in elderly haemophilia A patients, 10.1111/j.1365-2516.2009.02030.x
  11. Dunn AL. Malignancy in patients with haemophilia: a review of the literature. Hemophilia. 2010;16:427–436.
  12. Fennerty A, Venous thromboembolic disease and cancer, 10.1136/pgmj.2006.046987
  13. Kulkarni R., Soucie J. Michael, Evatt B., , Renal disease among males with haemophilia, 10.1046/j.1351-8216.2003.00821.x
  14. Manco-Johnson Marilyn J., Abshire Thomas C., Shapiro Amy D., Riske Brenda, Hacker Michele R., Kilcoyne Ray, Ingram J. David, Manco-Johnson Michael L., Funk Sharon, Jacobson Linda, Valentino Leonard A., Hoots W. Keith, Buchanan George R., DiMichele Donna, Recht Michael, Brown Deborah, Leissinger Cindy, Bleak Shirley, Cohen Alan, Mathew Prasad, Matsunaga Alison, Medeiros Desiree, Nugent Diane, Thomas Gregory A., Thompson Alexis A., McRedmond Kevin, Soucie J. Michael, Austin Harlan, Evatt Bruce L., Prophylaxis versus Episodic Treatment to Prevent Joint Disease in Boys with Severe Hemophilia, 10.1056/nejmoa067659
  15. Beaty James H., The future of orthopedics, 10.1007/s00776-008-1320-9
  16. GERSTNER G., DAMIANO M. L., TOM A., WORMAN C., SCHULTZ W., RECHT M., STOPECK A. T., Prevalence and risk factors associated with decreased bone mineral density in patients with haemophilia, 10.1111/j.1365-2516.2008.01963.x
  17. Hay CR. Inhibitors and their management using immune tolerance induction therapy. Journal of Thrombosis and Haemostasis. 2003;1(Suppl. 1):S47.
  18. Mei B., Pan C., Jiang H., Tjandra H., Strauss J., Chen Y., Liu T., Zhang X., Severs J., Newgren J., Chen J., Gu J.-M., Subramanyam B., Fournel M. A., Pierce G. F., Murphy J. E., Rational design of a fully active, long-acting PEGylated factor VIII for hemophilia A treatment, 10.1182/blood-2009-11-254755
  19. Plerixafor verbessert die Mobilisierung in der autologen hämatopoetischen Stammzelltransplantation, 10.1159/000321602
  20. Mahlangu JN, Coetzee MJ, Laffan M, et al. Phase I, randomized, double-blind, placebo-controlled, single-dose escalation study of the rFVIIa variant (BAY 86-6150) in haemophilia A or B with or without inhibitors. Haemophilia. 2010:16(Suppl. 4);1–158.
  21. Srivastava Alok, Dose and response in haemophilia - optimization of factor replacement therapy, 10.1111/j.1365-2141.2004.05110.x
  22. Abshire TC, Brackmann HH, Scharrer I, et al. Sucrose formulated recombinant human antihemophilic factor VIII is safe and efficacious for treatment of hemophilia A in home therapy — International Kogenate-FS Study Group. Thromb Haemost. 2000;83:811–816.
  23. Courter S.G, Bedrosian C.L, Clinical evaluation of B-domain deleted recombinant factor VIII in previously treated patients, 10.1016/s0037-1963(01)90108-8
  24. HERMANS C., DE MOERLOOSE P., FISCHER K., HOLSTEIN K., KLAMROTH R., LAMBERT T., LAVIGNE-LISSALDE G., PEREZ R., RICHARDS M., DOLAN G., , Management of acute haemarthrosis in haemophilia A without inhibitors: literature review, European survey and recommendations : ACUTE HAEMARTHROSIS IN HAEMOPHILIA: LITERATURE REVIEW AND SURVEY, 10.1111/j.1365-2516.2010.02449.x
  25. World Medical Association (WMA). World Medical Association Declaration of Helsinki, Ethical Principles for Medical Research Involving Human Subjects, Ferney-Voltaire, 2008. Available at: http://www.wma.net/en/30publications/10policies/b3/ . Accessed Oct 23 2010.
  26. Stephens-Lloyd Amanda, The extended role of the clinical research nurse: Building an evidence base for practice, 10.1177/136140960400900104
  27. Frank G. Is there life after categories? Reflexivity in qualitative research. Occ Ther J Res. 1997;17:84–98.
  28. WHO Adolescent Health. Available at: http://www.who.int/topics/adolescent_health/en/ . Accessed Jan 30 2012.
  29. LINDVALL K., COLSTRUP L., WOLLTER I.-M., KLEMENZ G., LOOGNA K., GRONHAUG S., THYKJAER H., Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia, 10.1111/j.1365-2516.2006.01192.x
  30. Gortmaker Steven L., Sappenfield William, Chronic Childhood Disorders: Prevalence and Impact, 10.1016/s0031-3955(16)34532-1
  31. BREAKEY V. R., BLANCHETTE V. S., BOLTON-MAGGS P. H. B., Towards comprehensive care in transition for young people with haemophilia : TRANSITION FOR HAEMOPHILIA, 10.1111/j.1365-2516.2010.02249.x
  32. Viner R., Transition from paediatric to adult care. Bridging the gaps or passing the buck?, 10.1136/adc.81.3.271
  33. GERAGHTY S., DUNKLEY T., HARRINGTON C., LINDVALL K., MAAHS J., SEK J., Practice patterns in haemophilia A therapy - global progress towards optimal care, 10.1111/j.1365-2516.2006.01189.x