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Displaying 20 results.
    • Journal article
    Quel accès aux soins palliatifs pour les enfants porteurs d'une maladie chronique complexe en Belgique?
    Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] (2020) Revue multidisciplinaire d'oncologie et hématologie — Vol. 14, no.1, p. 3 (2020)
    • Journal article
    Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study
    Friedel, Marie[UCL] Brichard, Bénédicte Boonen, Sabine Tonon, Corinne De Terwangne, Brigitte Bellis, Dominique Mevisse, Murielle Fonteyne, Christine Jaspard, Maud Schruse, Marie Harding, Richard Downing, Julia Namisango, Eve Degryse, Jean-Marie[UCL] Aujoulat, Isabelle[UCL] (2021) Journal of Palliative Medicine — p. 8p. (2021)
    • Report
    Appropriate care at the end of life. Report number 296
    Vandenbroeck, Kris Schmitz, Olivier[UCL] Aujoulat, Isabelle[UCL] Mistiaen, Patrick Friedel, Marie[UCL] Genet,Magali Ricour, Céline Kohn, Laurence[USL-B] Wens, Johan (2017)
    • Journal article
    Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review.
    Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] Dubois, Anne-Catherine[UCL] Degryse, Jean-Marie[UCL] (2019) Pediatrics — Vol. 143, no. 1, p. 22p. (2019)
    • Journal article
    Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014.
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Fonteyne, Christine Renard, Marleen Misson, Jean-Paul Vandecruys, Els Tonon, Corinne[UCL] Verfaillie, Françoise Hendrijckx, Georgette Andersson, Nathalie Ruysseveldt, Ilse Moens, Katrien Degryse, Jean-Marie[UCL] Aujoulat, Isabelle[UCL] (2018) BMC Palliative Care — Vol. 17, no. 1, p. 77 [1-11] (2018)
    • Journal article
    Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium
    Friedel, Marie[UCL] Gilson, Aurélie[UCL] Bouckenaere, Dominique Brichard, Bénédicte[UCL] Fonteyne, Christine Wojcik, Thomas De Clercq, Etienne[UCL] Guillet, Alain Mahboub, Alaa[UCL] Lahaye, Magali[UCL] Aujoulat, Isabelle[UCL] (2019) BMJ Paediatrics Open — Vol. 3, no.1, p. e000547 (2019)
    • Speech
    Do we evaluate the outcomes of our interventions in pediatric palliative care? A systematic review.
    Friedel, Marie[UCL] Degryse, Jean-Marie[UCL] Dubois, Anne-Catherine[UCL] Aujoulat, Isabelle[UCL] (2018) 3rd International Childrens Palliative Care Network (ICPCN) Conference: Innovation, Integration, Inspiration. — Durban,South Africa
    • Speech
    Des soins de liaison pour accompagner l’enfant en phase palliative et sa famille : Résultats d’une étude rétrospective auprès des 5 équipes belges de liaison pédiatrique
    Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] Brichard, Bénédicte[UCL] (2017) 22ème colloque GERIMOC — Libramont, Belgium
    • Speech
    Evaluating what we intend to reach: How should we measure children's quality of life in a palliative context? Searching for valid indicators of quality palliative care for children and their families
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Aujoulat, Isabelle[UCL] (2018) 10th Biennial Joanna Briggs Institute Colloquium 2018 Successful implementation of EBP: Hard work or good luck? — Antwerp, Belgium
    • Speech
    Defining appropriate ende-of-life care: a Belgian community study
    Van den Broek, Kris Schmitz, Olivier[UCL] Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] Wens, Johan (2018) 10th World Research Congress of the European Association of Palliative Care — Bern, Switzerland
    • Speech
    Definition of (in)appropriate care seen from the patient’s perspective.
    Friedel, Marie[UCL] Schmitz,Olivier[UCL] Van den Broek, Kris Wens, Johan Aujoulat, Isabelle[UCL] (2018) 10th World Research Congress of the European Association of Palliative Care — Bern, Switzerland
    • Speech
    The Belgian Liaison model of Paediatric Palliative Care: First findings of a retrospective study based on a national database (2010-2014)
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Fonteyne, Christine Misson, Jean-Paul Renard, Marleen Vandecruys, Els Aujoulat, Isabelle[UCL] (2016) 2nd International Children's Palliative Care Network Conference (ICPCN) — Buenos Aires, Argentinia
    • Speech
    Integrated Pediatric Palliative Care in Belgium: The Paediatric Liaison Model
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Fonteyne, Christine Misson, Jean-Paul Renard, Marleen Vandecruys, Els Degryse, Jean-Marie[UCL] Aujoulat, Isabelle[UCL] (2016) InSupC-RN Symposium EAPC (European Association of Palliative Care) Research Network — Brussels, Belgium
    • Speech
    Making the invisible more visible: a retrospective study identifying children and adolescents with complex chronic conditions and their access to specialised palliative care teams.
    Friedel, Marie[UCL] Gilson, Aurélie Bouckenaere, Dominique Brichard, Bénédicte[UCL] Fonteyne, Christine Wojcik, Thomas Mahboub, Alaa[UCL] Lahaye, Magali[UCL] Aujoulat, Isabelle[UCL] (2019) 16th World Congress of the European Association of Palliative Care (EAPC) — Berlin, Germany
    • Speech
    Hidden Part of the Iceberg: Making Paediatric Palliative Care in Belgium visible.
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Fonteyne, Christine Misson, Jean-Paul Renard, Marleen Vandecruys, Els Degryse, Jean-Marie[UCL] Aujoulat, Isabelle[UCL] (2016) 3rd International Maruzza Conference on Paediatric Palliative Care — Rome,Italy
    • Speech
    La qualité de vie des enfants en contexte palliatif: comment la documenter? Peut-on la mesurer?
    Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] (2018) 8ème Congrès International du Réseau Francophone de Soins Palliatifs Pédiatriques: faim de vie, fin de vie — Palais des congrès, Liège, Belgique
    • Speech
    Opinions and attitudes about end of life care: A Belgian community study
    Van den Broek, Kris Schmitz, Olivier[UCL] Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] Wens, Johan (2018) 10th World Research Congress of the European Association of Palliative Care — Bern, Switzerland
    • Speech
    How can we evaluate quality of life of children with life- limiting conditions? A pilot-study at one PPC center in Brussels.
    Friedel, Marie[UCL] Brichard, Bénédicte[UCL] Degryse, Jean-Marie[UCL] Aujoulat, Isabelle[UCL] (2018) 3rd ICPCN Children's Palliative Care Conference: Innovation Integration, Inspiration — Durban, South Africa
    • Journal article
    The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
    Friedel, Marie[UCL] Aujoulat, Isabelle[UCL] Brichard, Bénédicte Fonteyne, Christine Renard, Marleen Degryse, Jean-Marie[UCL] (2023) Children — Vol. 10, no.7, p. 1167 (2023)
    • Report
    Recensement d'un nombre d'enfants atteints d'une maladie chronique complexe en région de Bruxelles-Capitale (rapport final)
    Friedel, Marie[UCL] Gilson, Aurélie Aujoulat, Isabelle[UCL] (2018)