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The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany.

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Berntorp, Erik Dargaud, Yesim Hart, Daniel Lobet, Sébastien [UCL] Mancuso, Maria Elisa Taylor, Stephanie

The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

Document type Article de périodique (Journal article) – Compte-rendu
Access type Accès restreint
Publication date 2017
Language Anglais
Journal information "European Journal of Haematology" - Vol. 98, no. Suppl 85, p. 1-15 (2017)
Peer reviewed yes
Publisher Blackwell Pub. ((United Kingdom) Oxford)
issn 0902-4441
e-issn 1600-0609
Publication status Publié
Affiliations UCL - SSS/IREC/NMSK - Neuro-musculo-skeletal Lab
UCL - (SLuc) Service de médecine physique et de réadaptation motrice
MESH Subject Delivery of Health Care ; Disease Management ; Europe ; Germany ; Health Facilities ; Hemophilia A ; Hemophilia B ; Humans ; Patient Care Team
Keywords Clotting factor concentrates ; Genetics ; Haemophilia ; Laboratory assays ; Multidisciplinary ; Real-life data
Links
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Bibliographic reference Berntorp, Erik ; Dargaud, Yesim ; Hart, Daniel ; Lobet, Sébastien ; Mancuso, Maria Elisa ; et. al. The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany.. In: European Journal of Haematology, Vol. 98, no. Suppl 85, p. 1-15 (2017)
Permanent URL http://hdl.handle.net/2078.1/188438