This is the first study investigating the different factors that could impact quality of life in patients with ichthyosis. This provides an essential framework from which physicians can develop strategies to improve patient care and quality of life and to develop a specific quality of life questionnaire.
Oji Vinzenz, Tadini Gianluca, Akiyama Masashi, Blanchet Bardon Claudine, Bodemer Christine, Bourrat Emmanuelle, Coudiere Philippe, DiGiovanna John J., Elias Peter, Fischer Judith, Fleckman Philip, Gina Michal, Harper John, Hashimoto Takashi, Hausser Ingrid, Hennies Hans Christian, Hohl Daniel, Hovnanian Alain, Ishida-Yamamoto Akemi, Jacyk Witold K., Leachman Sancy, Leigh Irene, Mazereeuw-Hautier Juliette, Milstone Leonard, Morice-Picard Fanny, Paller Amy S., Richard Gabriele, Schmuth Matthias, Shimizu Hiroshi, Sprecher Eli, Van Steensel Maurice, Taïeb Alain, Toro Jorge R., Vabres Pierre, Vahlquist Anders, Williams Mary, Traupe Heiko, Revised nomenclature and classification of inherited ichthyoses: Results of the First Ichthyosis Consensus Conference in Sorèze 2009, 10.1016/j.jaad.2009.11.020
Gånemo, Eur J Dermatol, 14, 61 (2004)
Ganemo Agneta, Lindholm Christina, Lindberg Magnus, Sjoden Per-Olow, Vahlquist Anders, Quality of life in adults with congenital ichthyosis, 10.1046/j.0309-2402.2003.02820.x
Chamlin S. L., Effects of Atopic Dermatitis on Young American Children and Their Families, 10.1542/peds.2004-0374
Smith Saxon D, Hong Esther, Fearns Samantha, Blaszczynski Alex, Fischer Gayle, Corticosteroid phobia and other confounders in the treatment of childhood atopic dermatitis explored using parent focus groups : Corticosteroid phobia in the treatment of eczema, 10.1111/j.1440-0960.2010.00636.x
Styperek Andrew R., Rice Zakiya P., Kamalpour Loebat, Pavlis Michelle, Kuo James, Culler Steven, Spraker Mary K., Chen Suephy C., Annual Direct and Indirect Health Costs of the Congenital Ichthyoses : Cost of Congenital Ichthyoses, 10.1111/j.1525-1470.2010.01160.x
Aujoulat Isabelle, Marcolongo Renzo, Bonadiman Leopoldo, Deccache Alain, Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control, 10.1016/j.socscimed.2007.11.034
Bibliographic reference
Mazereeuw-Hautier, J ; Dreyfus, I. ; Barbarot, S. ; Serrentino, L. ; Bourdon-Lanoy, E. ; et. al. Factors influencing quality of life in patients with inherited ichthyosis: a qualitative study in adults using focus groups. In: British Journal of Dermatology, Vol. 166, no. 3, p. 646-648 (2012)